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Principles and practice in biobank governance
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| 目次 | What benefit sharing arrangements do people want from biobanks? A survey of public opinion in Australia Dianne Nicol and Christine Critchley Reconsidering altruism, introducing reciprocity, and empowerment in the governance of biobanks Nadja Kanellopoulou From benefit sharing to power sharing : partnership governance in population genomics research David E. Winickoff Co-determination of donors in biobanks Lukas Gundermann and Ulrich Stockter Developing an appropriate consent model for biobanks : in defence of "broad" consent Margaret Otlowski Consent by research ethics committees : the new law on biomedical research in Spain Antonio Casado da Rocha and Ismael Etxeberria Agiriano Addressing the ethical objections to pediatric biobanks Kristien Hens and Kris Dierickx Deciding whether to participate in a biobank : the concerns of healthy volunteers R. Jean Cadigan and Arlene M Davis Privacy interests in biobanking : a preliminary view on a European perspective David Townend ... [et al.] Feeding back significant findings to participants and relatives Loane Skene Ensuring participant privacy in networked biobanks Atieh Zarabzadeh ... [et al.] hSERN : a tool to help researchers with the legal requirements of cross-border exchange of biological material Emmanuelle Rial-Sebbag ... [et al.] Biobanking networks : what are the governance challenges? Jane Kaye Potential conflicts in governance mechanisms used in population biobanks Karine Bédard ... [et al.] UK biobank ethics and governance council : an exercise in added value Martin Richards, Adrienne Hunt and Graeme Laurie The end of individual control over health information : promoting fair information practices and the governance of biobank research Trudo Lemmens and Lisa Austin From public inquiry to policy : biobanks, population genetics and the public interest David Weisbrot.続きを見る |
| アクセス注記 | Taylor & Francis eBooks DRM Free Collection トライアル中(2023/3/31まで利用可能) 【Trial】This title is available until March 31, 2023. |
| 本文を見る | Taylor & Francis eBooks DRM Free Collection: 2009 |
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| 登録日 | 2023.01.20 |
| 更新日 | 2023.01.20 |