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Principles and practice in biobank governance

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目次 What benefit sharing arrangements do people want from biobanks? A survey of public opinion in Australia
Dianne Nicol and Christine Critchley
Reconsidering altruism, introducing reciprocity, and empowerment in the governance of biobanks
Nadja Kanellopoulou
From benefit sharing to power sharing : partnership governance in population genomics research
David E. Winickoff
Co-determination of donors in biobanks
Lukas Gundermann and Ulrich Stockter
Developing an appropriate consent model for biobanks : in defence of "broad" consent
Margaret Otlowski
Consent by research ethics committees : the new law on biomedical research in Spain
Antonio Casado da Rocha and Ismael Etxeberria Agiriano
Addressing the ethical objections to pediatric biobanks
Kristien Hens and Kris Dierickx
Deciding whether to participate in a biobank : the concerns of healthy volunteers
R. Jean Cadigan and Arlene M Davis
Privacy interests in biobanking : a preliminary view on a European perspective
David Townend ... [et al.]
Feeding back significant findings to participants and relatives
Loane Skene
Ensuring participant privacy in networked biobanks
Atieh Zarabzadeh ... [et al.]
hSERN : a tool to help researchers with the legal requirements of cross-border exchange of biological material
Emmanuelle Rial-Sebbag ... [et al.]
Biobanking networks : what are the governance challenges?
Jane Kaye
Potential conflicts in governance mechanisms used in population biobanks
Karine Bédard ... [et al.]
UK biobank ethics and governance council : an exercise in added value
Martin Richards, Adrienne Hunt and Graeme Laurie
The end of individual control over health information : promoting fair information practices and the governance of biobank research
Trudo Lemmens and Lisa Austin
From public inquiry to policy : biobanks, population genetics and the public interest
David Weisbrot.
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本文を見る Taylor & Francis eBooks DRM Free Collection: 2009

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登録日 2023.01.20
更新日 2023.01.20